going to take. I guess somewhere it seems that antibiotics are in the protocol for a patient on comfort measures. I wish my aunt would put a stop to all the unnessicary meds, treatments and such.
Grandma is out of ICU, now has a freaking mask and nasal cannula at 15L on both she runs in the 90% range when she is just laying there but drops to 58 to 70% O2 sats when she moves or talks.
First thing she asked my mom was "where is the party dress you made me and what time is the party?" She has a few lucid moments but not many. Her nursing care today was crappy at best. My mom got there around 10 this morning, nobody brought the lunch tray until after 1. The nurse showed up at 2:25 with two meds and didn't despense the rest because she had a meeting to get to. My mom had to feed grandma the lunch as nobody bothered to check on her or her progress. Mom found the thickening stuff somewhere on the unit after looking for the nurse. Then some other nurse chimmed in with the comment "were going to see if we can get the thickening disconninued since she won't be here much longer." My mom should have asked for the nursing manager at that point. That comment was insensitive and just plain rude.
So, who knows how many more days of this crap and wondering if the phone is going to ring or what. My grandma's wishes are very clear. She has lost her quality of life they should discontinue all but Oxygen and if she needs something when she gets anxious or in any pain. My mom is a retired nurse but after I brought up the point about the hanging another antibiotic she is going to bring it up with my aunt tomorrow. WTF is the point, they decided yesterday that if there was no improvement no more treatment of the infection. She is not going to get any better, let her finally have some peace and be free of all of the medical contraptions she has dealt with for so many years.
As for grandpa, unusual confused today. Too week to take any of his meds orally so they all went in the g-tube. He seems to think grandma will snap out of this again. He is refusing to go see her at the hospital, grandma requested him to come up there she has "a few things to say."
She told my mom today, "I know I am dying. I want all of you kids to share equally and not fight over what is left to whom, just love each other." She had maybe 5 lucid sentences in a 5 hour visit. Grandpa was so tired he didn't say much at all, which is very unlike him.
I'm trying to get my mom to take my son and I down if she goes on Thursday. My son is asking to see her and if I am feeling well enough I would like the chance to say goodbye. The driving is beyond what I can drive on even a good day anymore.
Yes, if I sound angry I am. My grandparents wishes are not being followed. They made decisions long ago and their decisions should be respected....period! Buying them another week or more is not beneficial to anyone in this case, it drags it on for both of them mentally, their children, friends, and grandchildren. Both of them know they are loved and will be missed, saw all 5 of their kids last week, most of the grandchildren. But, I feel strongly that their wishes of how they pass should be followed, as none are unethical....just let nature take its course.
I want my grandparents to die with dignity and have their wishes carried out as they had planned them. They were both of sound mind when they made those decisions. Neither want to be on this earth. They want to go and be with their parents and grandparents as grandma put it so nicely. Their time here is done.
I guess I don't see the point in going through the actions of treating for an infection with a lesser potant drug and keep this vicious cycle going. The family is not looking for more hours/days if they are not quality and are just passing more time. I sometimes think that modern medicine dictates that almost all patients should live even when the patient and their family know the envitiable and that they are to feel wrong if they choose not to do what the doctor wants. She said she wants peace, I think that is what they should let her have, in the most comfortable way possible.
Grandma is out of ICU, now has a freaking mask and nasal cannula at 15L on both she runs in the 90% range when she is just laying there but drops to 58 to 70% O2 sats when she moves or talks.
First thing she asked my mom was "where is the party dress you made me and what time is the party?" She has a few lucid moments but not many. Her nursing care today was crappy at best. My mom got there around 10 this morning, nobody brought the lunch tray until after 1. The nurse showed up at 2:25 with two meds and didn't despense the rest because she had a meeting to get to. My mom had to feed grandma the lunch as nobody bothered to check on her or her progress. Mom found the thickening stuff somewhere on the unit after looking for the nurse. Then some other nurse chimmed in with the comment "were going to see if we can get the thickening disconninued since she won't be here much longer." My mom should have asked for the nursing manager at that point. That comment was insensitive and just plain rude.
So, who knows how many more days of this crap and wondering if the phone is going to ring or what. My grandma's wishes are very clear. She has lost her quality of life they should discontinue all but Oxygen and if she needs something when she gets anxious or in any pain. My mom is a retired nurse but after I brought up the point about the hanging another antibiotic she is going to bring it up with my aunt tomorrow. WTF is the point, they decided yesterday that if there was no improvement no more treatment of the infection. She is not going to get any better, let her finally have some peace and be free of all of the medical contraptions she has dealt with for so many years.
As for grandpa, unusual confused today. Too week to take any of his meds orally so they all went in the g-tube. He seems to think grandma will snap out of this again. He is refusing to go see her at the hospital, grandma requested him to come up there she has "a few things to say."
She told my mom today, "I know I am dying. I want all of you kids to share equally and not fight over what is left to whom, just love each other." She had maybe 5 lucid sentences in a 5 hour visit. Grandpa was so tired he didn't say much at all, which is very unlike him.
I'm trying to get my mom to take my son and I down if she goes on Thursday. My son is asking to see her and if I am feeling well enough I would like the chance to say goodbye. The driving is beyond what I can drive on even a good day anymore.
Yes, if I sound angry I am. My grandparents wishes are not being followed. They made decisions long ago and their decisions should be respected....period! Buying them another week or more is not beneficial to anyone in this case, it drags it on for both of them mentally, their children, friends, and grandchildren. Both of them know they are loved and will be missed, saw all 5 of their kids last week, most of the grandchildren. But, I feel strongly that their wishes of how they pass should be followed, as none are unethical....just let nature take its course.
I want my grandparents to die with dignity and have their wishes carried out as they had planned them. They were both of sound mind when they made those decisions. Neither want to be on this earth. They want to go and be with their parents and grandparents as grandma put it so nicely. Their time here is done.
I guess I don't see the point in going through the actions of treating for an infection with a lesser potant drug and keep this vicious cycle going. The family is not looking for more hours/days if they are not quality and are just passing more time. I sometimes think that modern medicine dictates that almost all patients should live even when the patient and their family know the envitiable and that they are to feel wrong if they choose not to do what the doctor wants. She said she wants peace, I think that is what they should let her have, in the most comfortable way possible.