problems with priapism

[ben40]

im in need of advice. i'm a 25 year old otherwise fit, healthy guy but who has been fighting a nightmare battle with priapisms. for those of you know its an unwanted, painful erection that requires emergency treatment because it wont go down. it all started about 15 months ago when for no reason i woke up with one. to this day the doctors havent been able to explain why. anyway i was freaked out but i didnt know what was going on and was embarrassed to go to the doctors, but when i finally did i had to get flown to a city hospital for an emergency operation... my penis was drained with needles! this hurt soooooo much and my penis was bruised for a few weeks after. anyway it had been about 24 hours and my penis was damaged meaning i couldnt get proper erections for months and months afterwards. i finally had sex with a girl about six months later, but then the priapisms started again and again. i had to go to the hospital again and again and again and again and they tried everything to work out what the problem was but couldnt understand it. i had arteriograms, blood tests, you name it. it was so bad i had to leave my job, because it was happening 3-4 times EVERY WEEK. it was taking a massive toll on me psychologically as well, and i still feel mentally scarred. i feel like something is wrong with me even though i know its not my fault, and im so embarrassed, i've lost a ton of confidence from all this, and i had to resign from 2 awesome jobs. i had a girlfriend of 2 years who i was really in love with but she stopped talking to me when i was impotent, that hurt like hell. anyway just recently they have put me on a drug called inderal (beta blocker) and so far, no priapisms, but i get really tired, and im struggling to get a solid erection as they interfere with that. in fact the only time i can get a solid one these days is when i wake up a priapism, but i just cant handle going into have my dick drained anymore. now, i have quite a large penis, but when its semi hard its just over 7 inches. (incidentally i lost confidence from this but i know my length is still pretty good) the problem is its not fully hard and hard to put a condom on accordingly. i can still have sex though. if anyone has ANY advice on any of the many problems i have brought up, please let me know their advice because its 15 months on and its often hard not to get depressed by all this, though i try my hardest...
thanks
ben

 

[stretcher74]

Have you tried:

1) Masterbate to Orgasm
2) Sudafed
3) Step Exercise - Step up and down on a block alternating legs quickly for 30-60 seconds or so. (forces blood into legs).
4) Cold Shower
5) there's some sort of emergency injection also ...

Drugs like Levitra/Cialis/Viagra work by blocking the reuptake breakdown of an enzyme - PDE5. Sounds almost like you aren't producing enzyme it in the first place.

you should talk to:

Urologist (check the plubing), have they done an ultrasound to check blood-flow.

Endrocinologiist(sp)

General:
I've even heard of tumors growth causing this sort of thing in rare cases.
mechanism is triggered by nerves at base of spine not in brain.


That's everything that comes to mind ...

 

[ben40]

thanks for the suggestions, i appreciate it! trying to "jerk it out" myself i have had only very rare success and usually it does nothing except cause even more pain. we've tried sudafed on doctors orders but have had only very, very limited success with that as well. have tried swimming in a cold pool but that doesnt work all that often, although its here that i've had the most success. otherwise i have to go to the hospital do have it drained with needles which as i'm sure you can understand is a pretty traumatising thing to have to go thru all the time! i think you are right though, it is clearly nothing to do with the brain. interestingly enough the only time i ever have a problem is waking up in the morning. if i am with a girl or whatever it always goes down normally. so something is obviously happening when i'm in a deep sleep, but it has the urologist and other doctors down here baffled. i had an ultrasound but it seemed fine! also blood tests... again.. fine. arteriogram... no damaged or blocked arteries detected. again, most recently they have tried a drug called inderal which has stopped the priapisms but now i'm really struggling to get a decent erection which i HATE and is severely denting my confidence with girls. if you could offer any other advice i would really appreciate it!
many thanks
ben

 

[Gisella]

Ben, i never heard of your condition before...

Well, i cant help you...but the only thing i know when dont know what to say or do when a person is going through difficult and stressful times is giving hugs...

:hug:

I hope many good things for you, ok?

 

[Matthew]

Ben, sorry to hear about your problems. I doubt anybody here can give you any help that a doctor isn't better qualified to give. And if one doctor can't solve the problem, keep searching for one who can.

Question: What is it about your condition that caused you to lose two jobs?

 

[stretcher74]

Ben, sorry to hear about your problems. I doubt anybody here can give you any help that a doctor isn't better qualified to give. quote]

agreed: be proactive and get more medical opinons till you get a proper answer. Be aggressive and proactve. Ask them questions. Hormone workup ? CAT scan lower spine ? MRI ?

did you try ?

3) Step Exercise - Step up and down on a block alternating legs quickly for 30-60 seconds or so. (forces blood into legs).


5) Beer ? Asprin ?

if you have to stay on the Indural and you're Mr. Softee. it's a little tricky. No doctor is gonna prescribe a PDE5 inhibitor with a history of Priapism I think. Could try horny goat weed I guess. exercise care.

Sleep thing is wierd. Maybe it is psychological.

Good Luck ...

 

[Dr Rock]

what a dismal story. i know fuck all about your condition so i can't advise you, but you certainly have my sympathy

 

[ben40]

thanks for the support guys...to answer the question, the problem was with it happening about 4 times a week, often until midday from the time i woke up (around 7am) i could never be at work at 9am!

 

[Greekdick69]

I am not sure I understand,

"you couldn't be at work at 9 am" because"

a) the erection was so obvious (couldn't you buy looser pants? and maybe tighter whities? so that your erect penis goes to the side and it's not so obvious pointing to the front?)

b) you had to go to the hospital to get it treated....and missed half of our work day..???

Anyway bro, sounds like a bad situation, this makes it clear that everything in excess is bad, whether is no wood at all or too much of it! I hope you find some solution to put you at mid point!

Good luck!

 

[Greekdick69]

Holy cow dude!

I thought this was something simpler, so I went on to read a little about it and few sources cite the "illness" as an effect of something more serious, so please get the act together and go to a specialist NOW!. The worst-very pesimistic site is this one.

http://www.midwesturologycenter.com/priaprism.htm

Hope you are all healthy and the Priaprism thing can be solved immediately!

Good luck!

 

[ben40]

yeah its seriously a nightmare! i'm hating it..
i see a urologist regularly but they have yet to find a solution thats satisfactory... after about 6 months they finally stopped the priapisms but it required such drastic measures that now i cant get an erection about 50% of the time i want it. clearly this isnt the way i want to live my life. i have only been on this drug for about 2 weeks... but yeah i had to leave my job because a) it hurt like hell, so i needed to go to the doctor... in any case had to do that before it caused even further damage, and 2) i would get arrested walking around pitching a tent in public!!!!!

 

[Gisella]

yeah its seriously a nightmare! i'm hating it..
i see a urologist regularly but they have yet to find a solution thats satisfactory... after about 6 months they finally stopped the priapisms but it required such drastic measures that now i cant get an erection about 50% of the time i want it. clearly this isnt the way i want to live my life. i have only been on this drug for about 2 weeks... but yeah i had to leave my job because a) it hurt like hell, so i needed to go to the doctor... in any case had to do that before it caused even further damage, and 2) i would get arrested walking around pitching a tent in public!!!!!

Ben,

Can you find out with your doctor if there is a support group for your condition or ED groups that can help you go through that? And about exercise and couseling too? Ask him about it...

I just found this article...http://www.rwjhamilton.org/ihealth/content.asp?PageId=P08541

Because i think its hard if you cant work and go out withou being embarrassed (u can be arrested?) than this situation may add more stress by staying at home...:wink: exercise do great things to the mind...and if he says ok please keep active!

Big hug!

 

[davidjh7]

yeah its seriously a nightmare! i'm hating it..
i see a urologist regularly but they have yet to find a solution thats satisfactory... after about 6 months they finally stopped the priapisms but it required such drastic measures that now i cant get an erection about 50% of the time i want it. clearly this isnt the way i want to live my life. i have only been on this drug for about 2 weeks... but yeah i had to leave my job because a) it hurt like hell, so i needed to go to the doctor... in any case had to do that before it caused even further damage, and 2) i would get arrested walking around pitching a tent in public!!!!!

I am definately no doctor, but I will throw this out for what it is worth. Given that an erection is stimulated by the spinal cord, near the base of the spine, I wonder if perhaps using some form of TENS unit might hep to block or lessen some of the nerve impulses. Or accupuncture doing something similar. It MIGHt allow you to reduce the level of your medication, and allow firmer normal erections when you want them. Discuss it with your doctor, of course, as you should with any possible things to try, but it is something that hasn't been mentioned yet. It isn't a cure or even a hint at the root cause, but it might allow some lessening of the symptoms until the root cause IS found. I wish you the very best,, and hope you have luck in finding an ultimate solution!!

 

[BigInBellevue]

You can't buy publicity like this. USA Today reports a California man is suing both BMW and motorcycle seat manufacturer Corbin after a four-hour motorcycle ride left him with a severe case of priapism. Henry Wolf claims he's had an erection since stepping off his 1993 BMW after a ride in September 2010, or some 20 months ago, if we're counting. According to the suit filed in California Superior Court, the seat's "ridge-like" design caused the painful condition. Wolf's lawyer says the man is unable to engage in sexual activity, and as a result, has endured "substantial emotional and mental anguish."

Wolf is suing for compensation from both BMW and Corbin for lost wages, medical expenses, emotional distress and general damage. Neither company has commented on the case.

 

[D_Bubba_Butter]

Don't think you should just have recurrent priapism for no reason...

When you have them, have the docs ever found any outflow problems with colour Doppler ultrasound of the penis? Normal arteriography? Any problems with clotting or other bloods? And I guess they've done abdominal/pelvic imaging?

From a practical point of view, wanking is unlikely to make it go away - you want to divert blood flow elsewhere. I've heard walking up & down flights of stairs recommended.

 

[GB_GB]

Priapism's a bitch. I learned about it in my Medical Terminology class. Masturbating it away isn't a good solution because priapism hurts like a bitch. There's probably something causing the problem, like a drug or something. He should get it checked out before it's too late, and by then he may end up with erectile dysfunction.

 

[MikeHHHH]

im in need of advice. i'm a 25 year old otherwise fit, healthy guy but who has been fighting a nightmare battle with priapisms. for those of you know its an unwanted, painful erection that requires emergency treatment because it wont go down. it all started about 15 months ago when for no reason i woke up with one. to this day the doctors havent been able to explain why. anyway i was freaked out but i didnt know what was going on and was embarrassed to go to the doctors, but when i finally did i had to get flown to a city hospital for an emergency operation... my penis was drained with needles! this hurt soooooo much and my penis was bruised for a few weeks after. anyway it had been about 24 hours and my penis was damaged meaning i couldnt get proper erections for months and months afterwards. i finally had sex with a girl about six months later, but then the priapisms started again and again. i had to go to the hospital again and again and again and again and they tried everything to work out what the problem was but couldnt understand it. i had arteriograms, blood tests, you name it. it was so bad i had to leave my job, because it was happening 3-4 times EVERY WEEK. it was taking a massive toll on me psychologically as well, and i still feel mentally scarred. i feel like something is wrong with me even though i know its not my fault, and im so embarrassed, i've lost a ton of confidence from all this, and i had to resign from 2 awesome jobs. i had a girlfriend of 2 years who i was really in love with but she stopped talking to me when i was impotent, that hurt like hell. anyway just recently they have put me on a drug called inderal (beta blocker) and so far, no priapisms, but i get really tired, and im struggling to get a solid erection as they interfere with that. in fact the only time i can get a solid one these days is when i wake up a priapism, but i just cant handle going into have my dick drained anymore. now, i have quite a large penis, but when its semi hard its just over 7 inches. (incidentally i lost confidence from this but i know my length is still pretty good) the problem is its not fully hard and hard to put a condom on accordingly. i can still have sex though. if anyone has ANY advice on any of the many problems i have brought up, please let me know their advice because its 15 months on and its often hard not to get depressed by all this, though i try my hardest...
thanks
ben

Yea man.. I feel your pain. Vitamin C is really good for the veins, blood vessels and overall blood flow down there. It wouldn't be a bad idea to get some of this directly into your penis skin. Check out Man1 Man Oil. It is a penis health creme that contains C and lots of other vitamins and nutrients. Hope this helps.

 

[hypolimnas]

Priapism's a bitch. I learned about it in my Medical Terminology class. Masturbating it away isn't a good solution because priapism hurts like a bitch. There's probably something causing the problem, like a drug or something. He should get it checked out before it's too late, and by then he may end up with erectile dysfunction.

This was one of the weirdest things I have seen

I there there must but significant psychological and relationship factors to work through as well as the medical ones. I don't think professional counselling would hurt in the first intense.

 

[hypolimnas]

and this info could be useful

scinfo.org: Specific Problems: Priapism - Sickle Cell Information Center

 

[someperson]

why did you bump a 10 year thread