Sex after a hysterectomy

Not_Punny

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Any time you have surgery there is a risk of complications.

Personally, unless it was verified cancer, I'd have nothing removed from down there. Every woman I know who had some form of hysterectomy ended up with problems -- some ceased to be sexual, some had bladder problems, and ALL of them gained weight.

There are other ways to treat "down there" problems if you have the discipline to eat something other than the "standard American diet" and if you have access to doctors who deal in BIOIDENTICAL hormones.
 

Luvhmlrg

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No I haven't had one yet, but it's been an option I've been considering for the extreme pain during menses due to scaring and adhesions. I want to know if anyone has either had a hysterectomy and how it changed their sex life, or know's someone willing to share the info. I'm worried about losing the ability to have vaginal orgasms and the desire for sex. Thanks!

I had my hysterectomy six years ago due to painful menses and other problems and I have never regretted it. My sex life is better for many reasons and my vaginal canal is not shorter then before.

No change for me. If they remove the ovaries then yes, you will need hormones (bio-identicals) but physically..nothing for me.

I have been on bio-identical HRT since shortly after my hyst and I love them. I would never go back to synthetic and I have no plans to stop them.

A hysterectomy unfortunately isn't a guaranteed solution to pain caused by scarring and adhesions (endometriosis). The surgery itself can cause internal scarring. I know a young woman in her early 20's who had a hysterectomy (her ovaries were left intact) but she continued to suffer tremendous pain daily, and during sex. She subsequently had her right ovary removed, and she's still in pain. It's a battle for her trying to manage her pain everyday. My mother had a total hysterectomy (because of fibroids & adenomysosis), and reacted badly to it. Her joints and muscled stiffened and she suffered excruciating pain throughout her body. For months, her doctor couldn't give her any answers. My mother later found out that she was suffering from fibromyalgia-in her case, possibly a post traumatic stress disorder triggered by her hysterectomy.

I know a hysterectomy can be beneficial to a lot of women, but I thought I should let you know the flip side of it. Please feel free to PM me if you need to know more.

If she had pain due to endometriosis then she needs to have both ovaries removed. The endometrial cells will respond to the cyclic changes of her menses, which are still happening even though her uterus and cervix are gone. If you still have your ovaries you still have a cycle and you can still have PMS. I knew of a woman who had endometrial cells in her nasal passage and every times she had her menses she got a nose bleed!
 

B_subgirrl

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My mum had a hysterectomy around ten years ago and she still maintains that it was the best thing she ever did. She experienced no problems whatsoever.
 

B_prettyswinggirl

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It's been a long time since I posted to this thread. Some of you know that back in late june I started a period that lasted over 6 weeks. I had to see a different dr because mine was out of the country.

An u/s showed an endometrial lining 4 cm think. The norm is only 1/2 cm thick. They immediately set up for biopsys and I waited about a week then was called back in to get the results. One of the biopsys was positive for endometrial cancer, but thank god not all three. It seemed to be caught in an early form and my doc wanted to do a total hysterectomy. My insurance insisted on hormone chemo eith high doses of provera which made me very sick.They also insisted on a lesser procedure called Novasure to completely eradicate the uterine lining because the ct scan that I now know wasn't very accurate seemed to confirm no breakout into surrounding tissues. I was in severe pain when I woke up and knew something was terribly wrong. They sent me home anyway and said that everything was normal.

Hours later I was vomiting uncontrollably and blacked out on the bathroom floor. I somehow managed to call 911 and was taken to the hospital my dr was out of. They were a joke and not only didn't treat me with a modicom of care, but assumed I had had an abortion and treated me like scum. They never even bothered to call my Dr for clarification. They also managed to violate my privacy act no less than 12 times. Yes, I have a lawyer and they are being sued.

3 days later in constant pain, a friend recommended her dr who just happens to be tops in his field of gyn and also hrt. I wound up in the er of his hospital before I could make it to my appt which was 4 days later. I had a massive uterine infection and the ct showed a huge mess. I was placed on 3 different antibiotics and was encouraged to be admitted. I declined and somehow made it through the weekend.

My friend drove me to the Dr. They did a full pelvic and u/s and told me I had no choice but be hospitalized or I would die. The other dr managed to not only create a massive infection, but he botched the novasure procedure also, and should not have placed me on such high doses of provera. He had just excellerated the spread of the cancer. Because I was so infected the dr could not go ahead and remove my uterus. The release of toxins into my bloodstream would kill me. I would need to go on powerful iv antibiotics in hospital to get the infection under control then at home for at leadt 2 weeks after on strict bedrest and no contact with anyone sick at all. This meant I couldn't see my children at all. That hurt most of all.

On wed the 28th I'm finally going to have the hysterectomy. It now has to be an abdominal ptocedure. I lose my cervix, uterus,fallopian tubes, ovaries and possibly part of my bladder that they think has been invaded too. I'll have a pic line installed and a pathologist standing by to say how extensive the cancer is. My dr thinks he'll be able to get it all but i'll have to have a full exploratory and lymphectomy too in order to be on the safe side. I won't know how bad things are till I wake up. My friend will be calling Nicodemous76 with updates and he's planning on creating a blog to keep my friends here informed. I'm scared, but glad the waiting is almost over.

Sorry this is so long I hope me telling my story will help some other women who may be going through something similar.
 
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LaFemme

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You know I'm going to be thinking about you. I wish I could be there to help you. I can't believe the journey you've been on this past year. I'm sending you my love and hugs!
 

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You know I'm going to be thinking about you. I wish I could be there to help you. I can't believe the journey you've been on this past year. I'm sending you my love and hugs!

You've been on quite a journey of your own to my friend! How are you feeling these days?

Tons of love, hugs, and Smooches back!
 

B_prettyswinggirl

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I'm thinking of you, PSG. I can't believe how horrible this has all been for you. I just don't know what to say.

*hugs*

Hugs right back! One day After I finish suing that horrible hospital, I may have enough money to fly Both Nico and I out to see you! Always wanted to visit your part of the world! OH! Nico's Guy too of course...Just think of the fun we could have! Lol! :tongue:
 

B_subgirrl

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Hugs right back! One day After I finish suing that horrible hospital, I may have enough money to fly Both Nico and I out to see you! Always wanted to visit your part of the world! OH! Nico's Guy too of course...Just think of the fun we could have! Lol! :tongue:

:biggrin1::biggrin1::biggrin1:

That would be brilliant!!!! You deserve a lovely holiday! Let's hope the lovely judge tells the horrid hospital that they owe you heaps of money because they were evil.
 

B_prettyswinggirl

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:biggrin1::biggrin1::biggrin1:

That would be brilliant!!!! You deserve a lovely holiday! Let's hope the lovely judge tells the horrid hospital that they owe you heaps of money because they were evil.

Lol! I certainly hope so! I'm also hoping that they get enough sanctions from the government that they'll think twice about treating someone with less than the dignity and compassion a hurting or sick patient deserves!
 

D_Rosalind Mussell

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Holy hell, PSG. I hope you are suing your insurance company as well because they insisted on the damn procedure. I'm so angry for you! :angry:

I sincerely hope this new doc continues to have your back and gives you superior care. You deserve it. I hope that lawyer is suing not just for money, but to have your medical bills covered for the rest of your life. There will surely be expenses beyond surgery so I hope he nails that hospital to a fucking wall.
 

B_prettyswinggirl

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Holy hell, PSG. I hope you are suing your insurance company as well because they insisted on the damn procedure. I'm so angry for you! :angry:

I sincerely hope this new doc continues to have your back and gives you superior care. You deserve it. I hope that lawyer is suing not just for money, but to have your medical bills covered for the rest of your life. There will surely be expenses beyond surgery so I hope he nails that hospital to a fucking wall.

He's one of the best lawyers we have in Augusta. I hadn't thought about asking for my med bills covered for life, but if it involved having to go back to that horrible hospital....shudder!!!
 

Not_Punny

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Holy crap! Yikes! Jeez! OMG!!!!

My best wishes to you. I hope you make a full recovery, and that the horrible doctor loses her license!!!!!
 
K

kundalinikat

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Wow, all those doctors totally ignored an obvious, painful, spreading infection. What the fuck. You should sue the pants off of them

Though I'm a man I'm posting in this thread because I've fooled around with a trans man, who had a vagina and uterus etc. and had a total hysterectomy when he transitioned, though kept his vagina. He loves the heck out of his pussy, and I sure enjoyed it, and he definitely felt different than women I've slept with who held normal cervix-containing vaginas. Instead of the cervix and the points above it and below it that lead to orgasms, he had one point in the back, I suppose it was the endpoint or groin of his vagina, where the scar/seam was, and it was a little bit vertical. Well, I am just long enough to strongly and hotly hit that spot, painfully during my orgasm ;) And he enjoyed any kind of sensation especially to the end spot, and he just couldn't get enough.

So, though I don't have before-and-after experience of a hysterectomied vagina I can vouch that it does not necessarily lead to ruin...!
 

RawDog

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Prettyswinggirl, I forwarded your post of two weeks ago to my wife and she was so moved by your post, she wanted to write this herself (hope the mods don't mind):

HI. MrsR here. I had a complete hysterectomy, although it was in 2 different surgeries a year apart. They were trying to save my ovaries, so they were not removed the first time. I was sick for 2 years, spent most of my days lying in bed on pain meds, poor husband got very little sex (although I think I have more than made up for it)!!! It was an awful experience. Our insurance company refused to pay for the surgery at first saying it was not necessary because my daily life was not negatively affected by my condition. (I had adenomyosis which is similar to endometriosis except it is on the inside of the uterus). They insisted I go on a 3 month trial of some drug that didn't work, then they wanted me to do some bullshit procedure that my Dr. said would not help. Anyway, my point is that my heart goes out to you. I completely understand your situation.
After my hysterectomy I was very upset about sex. It felt different. I was sure it felt different to my husband. I felt like my vaginal cavity was shorter. I no longer had a cervix, and when he came it would just leak out of me. There was no where for it to go. It really sucked. At first I just cried after sex. BUT, things got better. It took alot of time, probably about a year. I never felt the same as before, but different and now better. We are exploring new positions and depth that I did not think would be possible after my surgery. I hope this helps you. It takes a long time to heal, but it will get better.
 

Luvs2Squirt

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I sure hope your surgery will go well....
And yes sick it to them!!! Sue the crap out of that other so called doctor!!!
Sending you many positive thoughts and get well wishes..... <3
 

B_subgirrl

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Prettyswinggirl, I forwarded your post of two weeks ago to my wife and she was so moved by your post, she wanted to write this herself (hope the mods don't mind):

*hugs MrsR* I hadn't realised you guys (particularly MrsR) had had such a hard time. You've talked about the after effects here before, but not about the pre surgery stuff.

I am constantly horrified at the American health system. Here you may have to wait a long time for so called 'elective' :rolleyes: surgery, but as long as you don't have an incompetent doctor, you'll get the right one the first time round.

And MrsR should sooo be the poster child for sex after a hysterectomy. *goes off to have a small jealousy moment* :tongue:
 

spoon

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:heart: :smlove2: :flowers1:

i'm thinking sex will be just fine :smile:-my first thought is that you need to get healthy and strong. starting to plan a trip with nico and his man sounds like great fun.


let your lawyer be your help with your fight with the hospital. we all want you to be healthy and kick butt.


lots of hugs and good thoughts to you.
 

B_prettyswinggirl

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Prettyswinggirl, I forwarded your post of two weeks ago to my wife and she was so moved by your post, she wanted to write this herself (hope the mods don't mind):

HI. MrsR here. I had a complete hysterectomy, although it was in 2 different surgeries a year apart. They were trying to save my ovaries, so they were not removed the first time. I was sick for 2 years, spent most of my days lying in bed on pain meds, poor husband got very little sex (although I think I have more than made up for it)!!! It was an awful experience. Our insurance company refused to pay for the surgery at first saying it was not necessary because my daily life was not negatively affected by my condition. (I had adenomyosis which is similar to endometriosis except it is on the inside of the uterus). They insisted I go on a 3 month trial of some drug that didn't work, then they wanted me to do some bullshit procedure that my Dr. said would not help. Anyway, my point is that my heart goes out to you. I completely understand your situation.
After my hysterectomy I was very upset about sex. It felt different. I was sure it felt different to my husband. I felt like my vaginal cavity was shorter. I no longer had a cervix, and when he came it would just leak out of me. There was no where for it to go. It really sucked. At first I just cried after sex. BUT, things got better. It took alot of time, probably about a year. I never felt the same as before, but different and now better. We are exploring new positions and depth that I did not think would be possible after my surgery. I hope this helps you. It takes a long time to heal, but it will get better.

Huge hugs for posting this! You sound so similar to what I went through!! I thank you so much for posting this and thank the mods for allowing it. I feel that my insurance messed around with my doctors too much and dictated my treatment rather than the reverse! I had confirmed endometrial cancer present in one of the three biopsys taken and still they made me go through the hormone chemo treatment and having the ablation done when they should have gone straight to the hysterectomy. The pain has been incredible! I had it in my mind it would be more like my c-section recovery. I was sooo wrong! I have to admit I'm scared what penetration is going to feel like for the first time after. The few women I've talked to have all said it was very painful even with a very careful partner and you've pretty much confirmed the same thing...it's a very scary thought for me. Especially since I just started dating someone new. He's stuck by me before and after surgery and is a very gentle soul. I'm confident he'll wait, but I really hope it doesn't take me too long before I feel anything but pain in intercourse.

Huge hugs yet again!!!:hug:
 

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Wow, this only heightens my disdain for the American medical profession here. I have had my fair share of hospital time and the only place worse than a civilian hospital is a naval hospital with trainees. I feel for ya Mrs.Rawdog and im glad your recovery is coming along PSG! Im sure your guy will take it slow and you will come through this stronger than ever. Ded hope ya win that suit. I tried to sue a hospital after I almost died of sepsis on a gurney waiting to have my exploding appendix removed. All because they couldn't find a doc on my HMO(I think that was the case, I was only 12). I think our health care here is in severe need of repair but im just glad ya made it out alive. Its more than some get.